Autism-World

Q: My son was tested at school for autism and was found to have some symptoms but he is not severe enough for the school to classify him as such. They did recommend having him professionally tested and have blood work done.

I live near Omaha, NE and was wondering if there were any doctors near here that anyone would recommended.

Answer:

I imagine the genetic testing is for Fragile X syndrome. For recommendations, check with Creighton. They have a med school but I don’t know about a hospital. An academic setting will put you closest to the state of the art treatments. Or if not there, Children’s Mercy or KU Med in Kansas City are both excellent.

Please be very careful about the school’s recommendations. It is not in their best interest to provide the supports for our kids. Its hard to believe but its true. (My autistic child is 16 and I have been fighting for her since first grade). You have to know your stuff and you have to be prepared to stand up to school staff to try to get what your child needs. They say that they must give your child whatever you insist he needs but it doesn’t happen.

You need to have an IEP. I hope you can get connected with a good source of care for your child so you can know how to proceed and the earlier the better. There is no cure. There are however many treatments and therapies and you need all the help you can possibly get. I sound grim and it is but it is also your precious child. Very best luck to you.

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This entry was posted on Monday, September 3rd, 2007 at 8:36 pm and is filed under Ask and answer.